Cystic Fibrosis

Cystic Fibrosis

Welcome to the Cystic Fibrosis Project

Cystic Fibrosis (CF) is a genetic disease in which affected individuals produce thick, sticky mucus in multiple organs, including the lungs and pancreas. The complexity of this disease requires a multi-disciplinary, integrated approach to care. Nutrition care is central to this approach, since poor nutritional status of CF patients is associated with disease decline. Nutritional status is likely to be compromised in CF patients, because CF increases energy needs as well as nutrient malabsorption. Registered Dietitian Nutritionists (RDNs) are on the front lines of counseling patients with CF, their families and their health care teams regarding optimal, individualized, nutrition care to prevent malnutrition. Thus, it is crucial to improve understanding regarding methods by which RDNs can improve nutrition-related outcomes in CF patients, including nutritional status and lung function.

A scoping review was conducted on this topic. Use the tab titled Scoping Review in the left navigation bar for information on the scoping review and timeline for the systematic review. 

Project Team
The systematic review and guideline development team is comprised of a six-member volunteer workgroup. Expand the section below titled Project Team for a full listing of the individuals.


 
  • Scoping Review Project Team and Disclosures (2018)
    The following individuals contributed their valuable time and expertise to the review:

    Project Manager
    • Mary R. Rozga, PhD, RD
      Nutrition Researcher, Academy of Nutrition and Dietetics, Chicago, IL, USA
    Methodologist
    • Deepa Handu, PhD, RDN
      Senior Scientist, Academy of Nutrition and Dietetics, Chicago, IL, USA
    Content Advisors
    • Jessica Alvarez, PhD, RD
      Assistant Professor of Medicine, Division of Endocrinology, Metabolism and Lipids, Department of Medicine, Emory University School of Medicine, Atlanta, GA, USA
    • Ellen K. Bowser, MS, RD, LD, RN, FAND
      Faculty Nutritionist, Pediatric Pulmonary Division, University of Florida, College of Medicine, Gainesville, FL, USA
    Financial Contributors
    • Medical Nutrition Practice Group
    • Academy of Nutrition and Dietetics
    Disclosures of Potential Conflicts of Interest: In the interest of full disclosure, the Academy has adopted the policy of revealing relationships workgroup members and content advisors have with companies that sell products or services that are relevant to this topic. Workgroup members and content advisors are required to disclose potential conflicts of interest by completing the Academy Conflict of Interest Form. It should not be assumed that these financial interests will have adverse impact on the content, but they are noted here to fully inform readers:
    • Alvarez, J: received funding from the National Institute of Health for a grant
  • Systematic Review Project Team and Disclosures
    The following individuals contributed their valuable time and expertise to this project:

    Workgroup Members
    • Catherine M. McDonald, PhD, MS, RDN, Chair
      Clinical Dietitian, Intermountain Healthcare – Primary Children’s Hospital, Salt Lake City, UT, USA
    • Jessica A. Alvarez, PhD, MS, RDN
      Assistant Professor of Medicine, Emory University School of Medicine, Atlanta, GA, USA
    • Julianna Bailey, MS, RDN, LD
      Clinical Dietitian, University of Alabama at Birmingham, Birmingham, AL, USA
    • Ellen K. Bowser, MS, RD, LD, RN, FAND
      Associate in Pediatrics, UF Pediatric Pulmonary Division, Gainesville, FL, USA
    • Kristen M. Farnham, MSH, RD, CSP, LDN
      Metabolic Dietitian, Mayo Clinic Jacksonville, Jacksonville, FL USA
    • Laura Grande, MS, RD, LDN
      Clinical Dietitian, Children’s Hospital of Philadelphia, Philadelphia, PA, USA
    Patient Advocate Workgroup Members
    • Mark W. Mangus, Sr., BSRC, RPFT, RRT, RCP, FAARC
      Respiratory Care Practitioner, Self-Employed, San Antonio, TX, USA
    • Kathleen Q. Porco, MS, NBC-HWC
      Founder/CEO, Blooming Rose Foundation, Red Lodge, MT, USA
    Project Manager
    • Mary Rozga, PhD, RD
    Lead Analyst
    • Erica Gradwell, MS, RD
    Methodologist
    • Deepa Handu, PhD, RD
    Financial Contributors
    • Academy of Nutrition and Dietetics
    • Medical Nutrition Dietetic Practice Group

    Disclosures of Potential Conflicts of Interest: In the interest of full disclosure, the Academy has adopted the policy of revealing relationships workgroup members have with companies that sell products or services that are relevant to this topic. Workgroup members are required to disclose potential conflicts of interest by completing the Academy Conflict of Interest Form. It should not be assumed that these financial interests will have adverse impact on the content, but they are noted here to fully inform readers:
    • Alvarez, J: received funding from the National Institute of Health for a grant